About Me

I am a rare disease mom & advocate for my early childhood special education students and families. My husband and I have a beautiful daughter named Jordyn who was diagnosed with Alexander disease in October of 2015. We welcomed a beautiful baby boy, Harrison, in November of 2022.

We always strive to give our kids the best life possible and advocate fiercely for inclusion.

The Hard Truth

My daughter had a trach placed on October 4th of last year. I knew it was going to be a big transition, but I didn’t realize the toll it...

Jan 21, 2024

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New Year, New Priorities

When I was a little girl, I never saw my parents argue. I never saw my mom get upset, and I only recall my dad losing his temper once. I...

Jan 4, 2024

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Not so Happy Holidays

There is so much guilt surrounding the holiday season. While I love Christmas and the magic of the season, it brings on a sense of...

Nov 26, 2023

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Nowhere Else I’d Rather Be

My daughter has been in the hospital for a month. I have only left the hospital once to go to lunch with my husband. Many people have...

Oct 2, 2023

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Faith of a Mustard Seed

I’m not strong. I’m not brave. I don’t hold super powers. I am simply a mother who would do anything for her kids. I am a giver and a...

Aug 8, 2023

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Uncharted Territory

I’ve gotten really good at holding everything together. I’m usually able to manage problems that arise with a level head. I would even...

Jul 25, 2023

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Caregiver Summer

This week has been one of those caregiver weeks where I can’t catch my breath. Self-care looks like finishing a hot cup of coffee. ...

Jun 29, 2023

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Tiny Miracles

I was born to be a mother. I've known from a very early age that I wanted children. It's what drove my choice of a career in college. I...

Mar 27, 2023

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Gratitude

I've been on this medical mom journey for 8 years now. Before my daughter was born, I envisioned what her future would look like and who...

Mar 25, 2023

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Exhausted, but Exhilarated

The 4 month sleep regression is no joke. My son is learning new skills at a rapid pace, not to mention he's also cutting teeth. I've...

Mar 18, 2023

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Chosen

I’ve been doing a lot of soul-searching lately. I realized after I had my son that I wasn’t taking care of myself. Time is short and...

Feb 22, 2023

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Forever and Always

This week I’ve been rather nostalgic. My husband and I are celebrating our 10 year wedding anniversary on Friday. We’ve been together for...

Jan 11, 2022

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Confessions from the Hospital

The hospital is quite an eerie place on the weekends. The halls are dark and cold. Life is almost non-existent. It’s an eerie reminder...

Nov 13, 2021

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Love Knows No Bounds

Sweet baby girl. You are growing up before my very eyes. The moment I felt you kick in my belly, I knew you were destined for great...

Nov 1, 2021

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We Didn’t Know

It always amazes me when I hear people say things like “we didn’t know” when I talk about accessibility. They use the excuse that since...

Oct 22, 2021

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My Cross to Bear

I’ve been thinking a lot lately about this journey I’m on. The journey isn’t mine. It’s my daughter’s, but as her mother, I am her...

Sep 17, 2021

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Perseverance

Summer, for me, is a time of reflection. As a teacher, I have the luxury of slowing down in the summer months and focusing more on my...

Jul 27, 2021

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No Mr. Fix It

We live in a society where problems have to be fixed. If someone expresses a frustration, someone else feels compelled to share a...

Jun 24, 2021

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Isolation

I’ve always been socially awkward and struggled to make friends growing up. It wasn’t that I wasn’t well-liked, but I wasn’t one of the...

May 21, 2021

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Smell the Roses

Time is such a bittersweet thing. When we’re young, we often wish for time to fly by. We want to be old enough to get a phone, drive a...

May 14, 2021

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CONTACT

Thanks for your interest in Musings of a Medical Mom. For more information, feel free to get in touch and I will get back to you soon!