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Purple background with the words Musings of a Medical Mom in light purple and "Where hope & grief coincide" in white

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About Me

I am a rare disease mom & advocate for my early childhood special education students and families. My husband and I have a beautiful daughter named Jordyn who was diagnosed with Alexander disease in October of 2015. We welcomed a beautiful baby boy, Harrison, in November of 2022.

We always strive to give our kids the best life possible and advocate fiercely for inclusion.

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Jan 21

The Hard Truth

My daughter had a trach placed on October 4th of last year. I knew it was going to be a big transition, but I didn’t realize the toll it...

Jan 4

New Year, New Priorities

When I was a little girl, I never saw my parents argue. I never saw my mom get upset, and I only recall my dad losing his temper once. I...

Nov 26, 2023

Not so Happy Holidays

There is so much guilt surrounding the holiday season. While I love Christmas and the magic of the season, it brings on a sense of...

Oct 2, 2023

Nowhere Else I’d Rather Be

My daughter has been in the hospital for a month. I have only left the hospital once to go to lunch with my husband. Many people have...

Aug 8, 2023

Faith of a Mustard Seed

I’m not strong. I’m not brave. I don’t hold super powers. I am simply a mother who would do anything for her kids. I am a giver and a...

Jul 25, 2023

Uncharted Territory

I’ve gotten really good at holding everything together. I’m usually able to manage problems that arise with a level head. I would even...

Jun 29, 2023

Caregiver Summer

This week has been one of those caregiver weeks where I can’t catch my breath. Self-care looks like finishing a hot cup of coffee. ...

Tiny Miracles

Mar 27, 2023

Tiny Miracles

I was born to be a mother. I've known from a very early age that I wanted children. It's what drove my choice of a career in college. I...

Gratitude

Mar 25, 2023

Gratitude

I've been on this medical mom journey for 8 years now. Before my daughter was born, I envisioned what her future would look like and who...

Exhausted, but Exhilarated

Mar 18, 2023

Exhausted, but Exhilarated

The 4 month sleep regression is no joke. My son is learning new skills at a rapid pace, not to mention he's also cutting teeth. I've...

Chosen

Feb 22, 2023

Chosen

I’ve been doing a lot of soul-searching lately. I realized after I had my son that I wasn’t taking care of myself. Time is short and...

Jan 11, 2022

Forever and Always

This week I’ve been rather nostalgic. My husband and I are celebrating our 10 year wedding anniversary on Friday. We’ve been together for...

Confessions from the Hospital

Nov 13, 2021

Confessions from the Hospital

The hospital is quite an eerie place on the weekends. The halls are dark and cold. Life is almost non-existent. It’s an eerie reminder...

Nov 1, 2021

Love Knows No Bounds

Sweet baby girl. You are growing up before my very eyes. The moment I felt you kick in my belly, I knew you were destined for great...

Oct 22, 2021

We Didn’t Know

It always amazes me when I hear people say things like “we didn’t know” when I talk about accessibility. They use the excuse that since...

Sep 17, 2021

My Cross to Bear

I’ve been thinking a lot lately about this journey I’m on. The journey isn’t mine. It’s my daughter’s, but as her mother, I am her...

Jul 27, 2021

Perseverance

Summer, for me, is a time of reflection. As a teacher, I have the luxury of slowing down in the summer months and focusing more on my...

Jun 24, 2021

No Mr. Fix It

We live in a society where problems have to be fixed. If someone expresses a frustration, someone else feels compelled to share a...

Isolation

May 21, 2021

Isolation

I’ve always been socially awkward and struggled to make friends growing up. It wasn’t that I wasn’t well-liked, but I wasn’t one of the...

Smell the Roses

May 14, 2021

Smell the Roses

Time is such a bittersweet thing. When we’re young, we often wish for time to fly by. We want to be old enough to get a phone, drive a...

CONTACT

Thanks for your interest in Musings of a Medical Mom. For more information, feel free to get in touch and I will get back to you soon!

Journaling

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